Headache and Pain, It Must Be the Weekend!

Headache and Pain, It Must Be the Weekend!

Well, it is the weekend again.  I wish I was jumping for joy at the prospect of two days of freedom and fun.  Instead I woke up late…after a long night of the usual getting up to pee and struggle to get back to sleep…and there was my crashing headache again!  Actually, the pain was more in my face, around my right eye and all along the jaw, and on the right side of my nose.  Half a headache!  I never have a constant pattern, so I can never work out what could be the overall cause.   Continue reading “Headache and Pain, It Must Be the Weekend!”

I’m NOT Depressed!

Fibromyalgia is NOT Depression!

I generally don’t even bother with doctors now. I wish the doctors, physical therapists, and psychologists who dismiss me as another loony could spend an hour in my shoes. I am NOT depressed…I crave adventure, activities and socializing SOOOOO much! I make plans that I often cannot fulfill due to the overwhelming fatigue I feel.

I have felt depressed.  I know exactly what that feels like.  It is beyond words.  After my youngest son finished treatment for leukemia, I became severely withdrawn and could not get out of bed because I literally couldn’t.  My entire mind and body refused to let me see the promise of a new day, the possibilities ahead of me, the joy of living.  Instead, I just wanted to shrink into nothing, if I never emerged into society again…that would have been okay.  Life sucked and was not worth bothering with.   Continue reading “I’m NOT Depressed!”

Hello and Welcome

Hello and Welcome

If you are reading this, you are probably like me, affected by Fibromyalgia in some way. You may be fighting the good fight personally, or trying desperately to understand and help someone you know who is a Fibro Warrior.  Either way, I have to let you know, I am blogging to release some of the pent up frustration, anger, bemusement, and pain I feel from this debilitating disease.

I am NOT a professional.  I am NOT a doctor.  I am NOT someone who has studied Fibromyalgia and written papers/books on it.  What I AM, however, is an expert on MY OWN experience with Fibromyalgia.  And that is what I plan to share with you.  I’d love for you to join me…give me feedback, advice, share worries and woes, share successes and joys.  I believe this is a disease that needs to be talked about   It needs to be discussed.  It should be a disease that any old regular Joe on the street know and understands.  It is not any of these things yet…